sábado, 28 de enero de 2017

PICC


In another section I introduced you what is a PICC, basically is an internal via that arrives until your heart and it is used for chemotherapy. A PICC should last a year or a year and a half.

Step 1 When they introduce you the PICC

They insert it to you while you are awake so you must be really brave. ;). First of all while you are lying in a hospital bed they use an ultrasound scanner to look at the veins and arteries in your arm. Under normal circumstances they put it in you right arm. While they are scanning your arm, collarbone and heart they paint you with permanent marker to guide the way.
Later, they train you to do two movements one to be completely straing in the bed facing up with your future PICC arm facing the our of the bed the other on the bed head and neck completely straight. Then when the nurse gives you a signal you need to bend your neck and head in the position the nurse tells you. The nurse also measures your arm to check which type of PICC is needed for your body.
Before starting the process, they desinfect the room put you a hat and a mask. The nurse is wearing a hat and a mask too. He cleans the area where he is inserting the PICC this will be named the inserting point. He prepares the needles and injects a little of  anaesthetic, is important not to be shy here if you still feel a lot your arm ask for more anaesthetic.
He starts introducing the PICC and you shall freeze body until the nurse tells you to do the movement you have being training before. At last the nurse cleans the inserting point puts tapes on the PICC to hold it on your skin and puts some disinfectant, bandages and tapes it.


Step 2. Taking care of your PICC

Wearing a PICC will change your life. I love it because it allows me to receive my chemotherapies and other treatments through there. I can also take out blood from it. It is grand!
But say goodbye to your clothes, with your PICC and bandages your arm is just too big. For this time I am borrowing my brother´s and boyfriend´s jumpers and hoodies. Lucky me they have good taste in clothing. No one told me this but the first week after the PICC your arm will hurt a lot because your vein is complaining. You won´t be able to do anything with that arm for a week.

-You need to go to cure your PICC once a week at the hospital.
-You can´t scratch or squeeze your bandage.
-You shouldn´t use that arm to much, specially lifting things or doing sports.
-If you feel pain after the first week you should go to the hospital PICCs are painless unless is there any problem.

Step 3. What how your nurse cures your PICC really carefully 

I am wearing currently my second PICC, my first one moved because a nurse don´t cure it properly. This person hold my PICC on the bandage instedad of on the skin. Oh well...is water under the bridge now.

I am not a nurse but a this point I know perfectly how to cure PICCs. First you remove the bandage really carefully so you don´t cat the cable as an accident. Then you inject heparin or other substances so it doesn´t block they inject sodium chloride too. The nurse cures the insertion point with desinfectant or if it really bad puts some antibiotic cream. If the skin is really dry she moisturizes it too. When it dries the changes the tapes of the PICC for clean ones. Then she bandages everything again. First the light of the PICC, once the light is well wrapped she bandages the arm and she puts the light inside the arm bandage tapes everything and puts a net over it.





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Hodgkin´s disease


What Is Hodgkin’s Disease?

Hodgkin’s disease (HD) is a type of lymphoma, which is a blood cancer that starts in the lymphatic system. The lymphatic system helps the immune system get rid of waste and fight infections. HD is also called Hodgkin disease, Hodgkin lymphoma, and Hodgkin’s lymphoma.
HD originates in white blood cells that help protect you from germs and infections. These white blood cells are called lymphocytes. In people with HD, these cells grow abnormally and spread beyond the lymphatic system. As the disease progresses, it makes it more difficult for your body to fight infections.

Recovered from: http://www.healthline.com/health/hodgkins-lymphoma#Overview1

 

viernes, 27 de enero de 2017

Loss of Apetite




 Whenever you smell of food you will think: Yuck! specially after the chemotherapy treatment.
Some little advice for you:
  • Chemo treatment days eat only breakfast add proteins to eat if you can all the iron and proteins are really welcome. :)
  • After your chemo treatment do not eat or drink if you don´t feel like it. If you do eat only a quite small amount of food like some bread or nuts. Do not start eating again until your stomach asks for it again. With water and liquids you will be just fine. Sometimes during the week after the chemo you can have breakfas but not continue eating during the day, in that case if you can eat a proper dish go for it!.
  • Coca-cola helps me to feel happier and less dizzy give it a try if you want to.
  • Coffee is definetely a bad idea it tends to be too strong for the stomach.
  • Try to include vegs and fruit in your diet.
  • There is a medicine for the itchiness which will make you really hungry Polarmine, take them to help you eat more.
  • When you are in the middle of chemo treatment avoid cooking food with flavour or smell, this will help you to eat better also try to eat you food cold because it smells less. 

     

Shivers and Flushing Sensations


Yes you will feel cold and hot all the time no matter what is the temperature of the room. This is due to the medication that paralized your period. To deal with is I recommend to dress with layers and to have a fan next to you ;).


Chicken Cabbage Pasta


CHICKEN CABBAGE PASTA






First of all I want to thank my good friend Ivartz for sharing this recipe with me.

Ingredients
  • pasta
  •  a tray of chicken breasts
  •  half cabbage

Directions
  • Grab a pot and heat it.
  • Cut the cabbage in small pieces and add them to the pot.
  • Open the chichken tray and boil the chiken until is soft. 
  • Boil the pasta for ten minutes and drain the pasta adding cold water first.
  • Take out the pasta from the pot and chop it into small pieces.
  • Drain the water from the pot and add chicken and pasta and mix adding middle teaspoon of salt.


Pasta With Tuna


PASTA WITH TUNA (4 people)




Ingredients needed:
  • Pasta (you make your own calculation according to what you eat)
  • Natural tuna (3 cans)
  • 1 tomato box
  • cheese optional
Directions
  •  Boil the pasta in a pot for ten minutes.
  • Open the tuna cans and the tomato box.
  • Drain the pasta.
  • Put the pasta on the pot again adding the tomato box and the tuna.
  • Before served you can add cheese on top of the pasta

pizzas



All of the pizzas must be from the supermarket I can´t eat delivery pizza to smelly hehe.
For me the pizzas I can eat are:
  • ham and cheese pizza
  • Spanish ham and cheese pizza.
  • Hawaian pizza.   
       

Dealing With Food


When you are under a chemotherapy treatment your senses such as smell and taste will change. You will have a metallic flavour in your mouth and smells will bother you A LOT. Things you used to enjoy like kebaps, pizzas with smell, stews, lentils, anything that smells will disgust you.


(Image recovered from: https://www.google.es/search?q=estofado+tachado&client=firefox-b&source=lnms&tbm=isch&sa=X&ved=0ahUKEwjasfHNnuPRAhVMQBQKHWNgBxYQ_AUICCgB#tbm=isch&q=no+garlic&imgrc=Na0M0gci7vbRqM%3A)

For this reason it is a good idea to be imaginative and find new dishes to keep you well nourished.

Changes In Your Body


You will have some changes in your body.
  • Periods are paralyzed. This is done to protect your reproductive system as much as possible.
  • Holes all over your arms, tummy, bottom because of the injections.
  • You will have a PICC in your right arm ( if you are right-handed). What is a PICC?

    What is a PICC?

    "A peripherally inserted central catheter or “PICC” is a thin, soft, flexible tube — an intravenous (IV) line. Treatments, such as IV medications, can be given though a PICC. Blood for laboratory tests can also be withdrawn from a PICC." (Recovered from http://my.clevelandclinic.org/health/articles/peripherally-inserted-central-catheter-picc)

Medicines


Once you are a chronic sick you need to get use to take medication. You may not like it but you will take a lot of pills everyday.
For my treatment is:

daily
  • Alopurinol
  • Septrin
  • Aciclovir
  • Polaramine
injected through my PICC
  • AVBD chemotherapy 
  • pre-medication for my chemotherapy
  • heparin                                                                                                                                            
after-chemo medication
  • ondansentrón
  • primperan                     
 injected
  • filgastrim
  • decapeptyl
You might take other antianxiety medication if you feel really sad or anxious.



Infertility


This is one of the hardest moments you will endure as a Hodgkin´s disease. One day your hematologist will come along with a gynaecologist and they will say: "We need to talk about something, there is a big chance that you become infertile after the chemotherapy treatment.""Then the hematologist said: "Dear, we would like you to start the treatment as soon as possible, however you need to make your own decision you can consult with your husband, not with your parents they wouldn´t understand".
I remember but that time I was hospitalized. They told me to make a decision. I can recall the ginecologist told me:
"To what extent is important for you your genetic material?" I was in shock and I couldn´t say anything.
They gave me 24 hours to think about it. My reaction was that I started to cry I didn´t know what to do I have alsways wanted to be a mum but I felt it was really wrong to risk my own life for the chance of having babies. I told a nurse to go and bring me the hematologist and my sweet mum asked the hard question: "Is the life of my daughter in danger if we delayed the treatment?" The hematologist said no, so I made my decision: one day I would be a mum.

I don´t own this image I took it from: (https://www.google.es/search?client=firefox-b&biw=1366&bih=659&tbm=isch&sa=1&btnG=Buscar&q=infertilidad+por+cancer#imgrc=tXWBHkVm_0SPSM%3A)

hats, shawls, bandanas.


They are more comfortable option.

From experience wigs are like shoes, you need a certain amount of time to get use to them.
Moreover, it is necessary to buy a wig special hat I like the ones made of bamboo.

A good place to buy hats is amazon.

I like this ones:



fatigue


There is nothing you can do to improve fatigue. I recommend sleeping 8 to 10 hours. My nurse told me this: "If you are tired standing up, sit down, if you keep tired sitting down, lie down".

( I don´t own this picture I took it from https://www.google.es/search?q=cansancio&client=firefox-b&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiAjKCSiePRAhXDtxQKHYqxBBQQ_AUICCgB&biw=1366&bih=659#imgrc=A65J0tQ8OhulWM%3A)

Changes In Your Skin


One thing is for sure, your skin will change with chemotherapy.
You will have it more dry and weird spots where your skin is of different colour.
I recommend aloe vera to keep your skin well moisturized


itchiness


Two years before the treatment a was itchy everyday all over my body. I blamed this to stress because I was under a lot of pressure but it turned to be a Hodgkin´s disease.

discovery


Resultado de imagen de adenopatia del linfoma de hodgkins



 I don´t own this picture I found it on the internet on: (https://www.google.es/search?q=adenopatia+clavicula&client=firefox-b&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiPkf3e9-LRAhUH7hoKHazkA34Q_AUICCgB&biw=1366&bih=659#tbm=isch&q=adenopatia+del+linfoma+de+hodgkins&imgrc=6Ub-52SaWdor4M%3A)


One Sunday a big bump appeared on my right side of my collarbone, I was scared because I didn´t know what to do so I went to the emergency room and they hospilalized me.

Buy a nice wig

                                            I own this photo this is me Ana :)

I can tell you in my city. In Alcalá de henares there is a shop in plaza de los irlandeses where you can find excellent wigs at a good price. My advice would be to buy it before you lose you hair that way you can find one that it as similar as you natural colour as possible.
I bought my wig made of microfibre and looks quite natural hair, the price was around 200 euro.
 


http://www.sensibelle.es/













Dealing with the hair loss



Losing your hair is hard and even harder when you are a young woman. You need to think that it is only a temporary process. And that the hair will grow up again.
You need to surround yourself by people who support you and love you: your family, friends, workmates and other mates that you have that have you met along the years.
My sweetheart told me once that without hair I look like a pretty squirtle ( I guess you are familiar with the water pokemon haha :) ) Here you have a photo of the squirtle


Nausea remedies


You will have nausea from the beginning of the treatment. But not worry!!!


Hematologists and oncologists are wise people and they will know what to give you to make you feel much better.
Here I tell you some medicines they gave me for my nausea:
  •  Ondansetrón (this is really strong and the one that works best for me, the downside effects are that when you stop taking it you feel a bit dizzy.)
  • Primperan is great but softer than ondansentrón. You can find it on syrup or pills. I tried with the syrup but the flavour made me vomit so I started with the pills.
  • Coca-cola. (The regular one) Weird as it seems, coca-cola makes me just feel better when I have nausea or dizzyness is the only liquid that my body can retain.
  • If after all these you still feel with nausea just throw up it may feel you better. I try not to throw up because it makes your body lose 

Rice with tuna and eggs


In this cooking section I will tell you food you can eat while you are under a stron chemotherapy treatment. The aim is to prepare food odourless and flavourless for those who suffer from the secondary effects of the chemotherapy.

The dish of today is:

WHITE RICE WITH NATURAL TUNA AND SCRAMBLED EGGS.

Ingredients (4 people) :
  • Tuna (3 cans) The tuna must be conserved natural not in oil or marinaded
  • eggs (3)
  • rice (1 small cup for person)
  • Tomato sauce (if in your country you can´t buy tomato sauce I will give a recipe to make a home made one).
Preparing it:

First you boil the rice in a pot for 20 minutes. Meanwhile you get a saucepan and prepare scrambled eggs with some drops of olive oil. Later you put the scrambled eggs on a plate and add the cans of tuna and mix them.
When the rice is boiled you drain it with cold water, put it on the pot again and mix it with the scrambled eggs, tuna and tomato sauce.

(If your body tolerates fine you can add oregano, black pepper or other spices).

I hope you enjoy my recipe.